Jana & DJ Everett

Categories: Overcoming
Date: 25 May 2016 17:35
Name: Jana Everett 

Comment: Thank you for creating such an inspiring brand.  My 7 year old son, DJ, was diagnosed at 4 with Charcot-Marie-Tooth disease* and at 6 became area ambassador for MDA. He keeps me going on my bad days because I have it as well.  He loves wearing his SAYiWON'T shirt to swim meets, MDA camp, and other places where it might inspire someone. Keep up the great work.  BTW, I wear my SAYiWON'T shirt to work on my really bad days to keep me going. DJ has the creed on his door to his bedroom and I have it above my desk. Our whole family now have SAYiWON'T shirts. #LiVETHECREED
 
*Charcot-Marie-Tooth disease (CMT) is one of the most common inherited neurological disorders, affecting approximately 1 in 2,500 people in the United States. The disease is named for the three physicians who first identified it in 1886 - Jean-Martin Charcot and Pierre Marie in Paris, France, and Howard Henry Tooth in Cambridge, England. CMT, also known as hereditary motor and sensory neuropathy (HMSN) or peroneal muscular atrophy, comprises a group of disorders that affect peripheral nerves. The peripheral nerves lie outside the brain and spinal cord and supply the muscles and sensory organs in the limbs. Disorders that affect the peripheral nerves are called peripheral neuropathies.
 
Jana E
Pics (Left to Right):  We were dropping him off at MDA camp for the first time. The larger group is our MDA MuscleWalk team.  The last one is him in a stroller that we used until we got his new wheelchair. 
 
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